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Summary


Chronic Myeloid Leukemia (CML) was the diagnosis I received on November 1, 2005. I went into the clinic three months earlier because of a tightness in my chest, left side, resulting even from a short walk out to my car. Then the week before diagnosis I went in because of a strange bulge in the left side of my abdomen, felt when lying in bed on my back. Turned out to be a rather large spleen, later measured at 11cm below the rib cage.

Since then, my family and I have been through some trying times. And as a Naval Officer stationed overseas in the UK and with family and friends living throughout the world, including the United States, United Kingdom, Ireland, Germany, Japan and Australia, I decided early on that it would be easier to update everyone via a blog than by email or phone.

I tried, and resisted, Gleevec. I also tried Sprycel but I proved intolerant to it because my counts dropped as soon as I took more than 50mg daily (standard is 100 to 140 mg daily). So I turned to a bone marrow transplant, which I underwent November 31, 2007 at the Fred Hutchinson Cancer Research Center in Seattle, WA. I have since been dealing with chronic graft versus host disease (GVHD) issues with my GI tract (resolved), eyes, mouth, and now my lungs. The lung problem is pretty bad as I hve been diagnosed with bronchial obliterans and now have only 42 percent lung function and am on oxygen a great deal of the time.

But not to fear; I am hanging in there, keeping my spirits up and continuing with my life. Through this blog, people have followed my treatment plans through success and failures, various types of medical appointments and procedures, my fluctuating counts, etc. Besides information detailing my own experiences, I also try to include general aspects of CML, various forms of treatment and the experiences of a stem cell transplant.

Monday, March 2, 2009

The Nasty Common Cold

Since my last posting, I received lab results from the doctor in Internal Medicine. He phoned to tell me my iron levels were low so I am now taking iron supplements. He also ordered a colonoscopy, which was supposed to have been last Friday, except that I have a cold so they postponed the procedure until the 18th March. I have had this terrible cold for over two weeks now and just haven't been able to shake it, despite several days in bed. So today I went to the Air Force Academy to be seen in the Acute Care clinic. I am finding that where most people would be given cold meds and sent home, I have been tested and prodded a bit more, just to be safe. So another chest x-ray and blood work didn't indicate anything out of the ordinary. My blood pressure was very low though, which the doctor contributed to dehydration. I have had diarrhea for the past three days and I have been so tired, to the point it can be hard to breath. After a liter and a half of fluids in an IV and I felt better. That is until this evening when I deposited that liquid as quickly as I took it in. Anyway, the doctor has given me an anti-biotic and an inhaler for the cold and wheezy chest. I hope to feel their benefits within a day or two.

I have my monthly oncology appointment scheduled for this Thursday so I will discuss the possibility that the chronic gvhd is coming back to my gut. I think it fits because just a week ago I finished the taper off of Budesinide, which is a steroid that helps the lower GI system.

My mouth sores have been hurting a lot lately as well. No help from the suppressed immune system which has been squashed even more with the cold. But for some good news, it would appear that my eyes are getting a bit better. Maybe the increase in tacrolimus is helping combat the gvhd.

I hope you are all well.

David

2 comments:

Anonymous said...

David,

Thanks for sharing so much with us. I certainly learn and gathter so much i hope throught your posts.
As the Hutch sad, the gvhd is bruning out any ole lurking CML cells. BURN BABY BURN!

Hope you are feeling better? I know they are treating you cautiously since we are weird medical oddities!

Anonymous said...

Hey Dear Brother of mine,

Sorry to hear that you are still not feeling well. Please think about coming out to sunny California for some much needed WARM SUN. We would love to see you. I am thinking of bring the kids out in August. I would drive out with my neighbor and her kids as her mom is out in that area as well. I'll keep you posted.

Take care of yourself and try not to let this get you down. Stay Strong...Love you tons,
Lisa