| Blog Summary | My Profile | Contact

Summary


Chronic Myeloid Leukemia (CML) was the diagnosis I received on November 1, 2005. I went into the clinic three months earlier because of a tightness in my chest, left side, resulting even from a short walk out to my car. Then the week before diagnosis I went in because of a strange bulge in the left side of my abdomen, felt when lying in bed on my back. Turned out to be a rather large spleen, later measured at 11cm below the rib cage.

Since then, my family and I have been through some trying times. And as a Naval Officer stationed overseas in the UK and with family and friends living throughout the world, including the United States, United Kingdom, Ireland, Germany, Japan and Australia, I decided early on that it would be easier to update everyone via a blog than by email or phone.

I tried, and resisted, Gleevec. I also tried Sprycel but I proved intolerant to it because my counts dropped as soon as I took more than 50mg daily (standard is 100 to 140 mg daily). So I turned to a bone marrow transplant, which I underwent November 31, 2007 at the Fred Hutchinson Cancer Research Center in Seattle, WA. I have since been dealing with chronic graft versus host disease (GVHD) issues with my GI tract (resolved), eyes, mouth, and now my lungs. The lung problem is pretty bad as I hve been diagnosed with bronchial obliterans and now have only 42 percent lung function and am on oxygen a great deal of the time.

But not to fear; I am hanging in there, keeping my spirits up and continuing with my life. Through this blog, people have followed my treatment plans through success and failures, various types of medical appointments and procedures, my fluctuating counts, etc. Besides information detailing my own experiences, I also try to include general aspects of CML, various forms of treatment and the experiences of a stem cell transplant.

Thursday, March 12, 2009

The longest cold ever

Well I was able to hold on to that cold/bug for a month and add bronchitis, even with ten days of antibiotics and an inhaler. Last week alone I saw three different doctors, went to five appointments between the Air Force Academy hospital and the oncologist clinic at Rocky Mountain Cancer Centers. I had three chest x-rays, three and a half liters of fluid via IV, three blood tests and one cardio echo gram. Tests were negative so the consensus was that I was tired and winded because of dehydration (I had 8 days of diarrhea too), which was the reason for the fluids.

Anyway, I am starting to feel much better now, thank you for asking. I started feeling better after 8 days on the antibiotics. We figure it has taken so long because of the suppressed immune system. I am still feeling very winded just from walking up stairs to a slight incline on walks with my son to school. That should correct itself with time. And the important bit; I am still in remission. Thank God for all you donors out there, although we could always use more. Tell your friends to sign up and save a life. We recipients appreciate it and so do our families.

So I am now scheduled for a colonoscopy for next Wednesday. It was supposed to be two weeks ago but I had to postpone because of the cold/bug. This procedure is to check for GVHD of the GI tract to make sure I am not flaring up again. The symptoms have been diarrhea and some nausea.

Other than that I have been keeping busy with my graduate studies. It has been difficult with the GVHD of the eyes and fatigue but I am hanging in there. I have already registered for my next course, which when finished will mean a graduate certification in Homeland Security. These credits also go towards the M.S. in Computer Systems Management with concentration in Information Assurance.

Well that's it for now. Thanks for staying updated.

David

1 comments:

Anonymous said...

David,

I REALLY hope the colonoscopy goes okay and you at least get some results. You and I weigh the same right now and I am sure that is zapping you of energy. If it is GVHD than you can attack it and hopefully see some results soon!

Nice work on kicking the cold! Needless to say, I am BLOWN away that you are doing graduate work!! COGRATS- what a milestone with all the other things in your life!
Lea