| Blog Summary | My Profile | Contact

Summary


Chronic Myeloid Leukemia (CML) was the diagnosis I received on November 1, 2005. I went into the clinic three months earlier because of a tightness in my chest, left side, resulting even from a short walk out to my car. Then the week before diagnosis I went in because of a strange bulge in the left side of my abdomen, felt when lying in bed on my back. Turned out to be a rather large spleen, later measured at 11cm below the rib cage.

Since then, my family and I have been through some trying times. And as a Naval Officer stationed overseas in the UK and with family and friends living throughout the world, including the United States, United Kingdom, Ireland, Germany, Japan and Australia, I decided early on that it would be easier to update everyone via a blog than by email or phone.

I tried, and resisted, Gleevec. I also tried Sprycel but I proved intolerant to it because my counts dropped as soon as I took more than 50mg daily (standard is 100 to 140 mg daily). So I turned to a bone marrow transplant, which I underwent November 31, 2007 at the Fred Hutchinson Cancer Research Center in Seattle, WA. I have since been dealing with chronic graft versus host disease (GVHD) issues with my GI tract (resolved), eyes, mouth, and now my lungs. The lung problem is pretty bad as I hve been diagnosed with bronchial obliterans and now have only 42 percent lung function and am on oxygen a great deal of the time.

But not to fear; I am hanging in there, keeping my spirits up and continuing with my life. Through this blog, people have followed my treatment plans through success and failures, various types of medical appointments and procedures, my fluctuating counts, etc. Besides information detailing my own experiences, I also try to include general aspects of CML, various forms of treatment and the experiences of a stem cell transplant.

Thursday, January 15, 2009

Them bones, them bones, them - my bones

Yesterday I paid a visit with my primary care manager at the US Air Force Academy hospital. I really like this doctor in Internal Medicine. He is so knowledgeable, thorough and takes the holistic approach. We discussed my problem with trying to gain weight and he referred me to a cancer rehabilitation program. We discussed my chronic sniffles, he said my nostrils are real inflamed and he prescribed a new nasal spray, which seems to already be doing the trick. We discussed my mental health and he has prescribed me with Remeron to take along with the Lexapro I am already taking. The added side affects are drowsiness and increased appetite.

Finally, we discussed the Fred Hutchinson's suggestion that I repeat a bone density (DEXA) scan in about three months because of my previous results. The doc reviewed my numbers and recommended we begin treatment for osteoporosis now with a follow-up DEXA scan in a year. He has prescribed Fosamax plus D, which he said I would need to stay on for two to five years. And Fosamax requires plenty of calcium in the body so I need to continue with the calcium and vitamin D supplementation.

While at the hospital for my appointment I also went in to immunizations for my two-month booster shots, two per arm. Polio, HiB, Tetanus-Diphtheria, and Hep B. They had to use a baby needle because of my puny arms. And my right arm is soooo sore.

As far as how I am feeling these days, I have been in a bit of a slump lately, feeling especially tired and winded. So I have been trying to get out for more walks with our new toy poodle, Molly. I am also convinced that once I begin working with a cancer rehabilitation training specialist and begin to gain some muscle and weight, then I will begin to feel better. Meanwhile, I am still dealing with graft versus host disease (GVHD) of my mouth, eyes and maybe a little skin. Except for my eyes, I am not really bothered too much by it. It is difficult to see sometimes, especially with my left eye. If I don't see improvement soon I'll need to get eye glasses to help me read. In a week I am starting back with my graduate studies, picking up where I left off almost two years ago. But this time the Department of Veteran Affairs is picking up the tab.

2 comments:

Anonymous said...

David,

Thanks for the post and update. Molly is adorable and so incredibly little. Great perspective next to the flower pot.

I hope the bones improve and the cancer rehab program sounds amazing! Plus your graduate studies will be keeping you super busy.

This is a long hail to say the least. You are doing a great job.
Say hi to your family,
Lea

Anonymous said...

David,

As promised, I've visited your blog and gotten caught up on what I have missed.

I'm praying for restoration of health and your graduate studies.

Say hello to the family for me, I'll be checking on your progress and if there is anything I can do to help, support or promote. Let me know.

- Chris